 |
||||
 |
 |
 |
||
|
|
|||
| Before | During | After |
I had Christian when I was 19 years old. For the first year of his life I couldn’t imagine anything being wrong with my baby. He smiled; he laughed; he rolled, crawled and walked on time. At age one he had a massive overload for his little immune system. He had two ear infections, a high fever, back to back treatment of major antibiotics and he was given his MMR, varicella and HIB vaccines while he was still very sick. Christian faded away for the next 6 months.
At age two he was diagnosed with full syndrome Autism. I met an amazing mother who introduced me to the group Talk About Curing Autism. Before I found out about TACA, I had no clue that there was hope for my child. From that day on I knew that it was my job to get my son back and undue what had been done to him.
It has been three years since Christian was diagnosed with Autism. I had taken what I had learned from TACA, found wonderful therapists, began a diet, found a DAN! Doctor, and took control of my child’s health. I heard his first word when he was 38 months old, and let me tell you, it was worth the wait.
Today Christian attends a typical private preschool. He is the only child in the class with a diagnosis…and none of the other parents know that. He speaks clearly, has friends, reads, pretends on the playground and even knows what he wants to be when he grows up (which of course changes weekly).
I can honestly say, if I had not found that mom (you know who you are), and not been introduced to TACA, I don’t know where Christian would be today and I don’t know if I would ever have been able to help other parents starting this journey. Thank you TACA, thank you my hero mom, and thank you Christian for fighting this with me. I love you.
Chelsi, Washington State
There are millions of web sites that have "autism" as a key word search. Here is a list of web sites that may provide beneficial information to your family.
PLEASE REMEMBER, when consulting the web for medical information please consult with a doctor before trying any medical intervention on your child.
General
National Institutes of Mental Health - Autism
US Autism & Asperger Association
Autism Society of America (ASA)
Donna Williams: an author and an incredibly gifted autistic woman
Dana's View: great site on a parents view on her child. Both have autism – a true “insider's view!”
National Learning Disabilities
National Info Center for Children with Disabilities
State-by-state Resource for Parents
California Resources
Department of Developmental Services (DDS) – Complaints and information about California Regional Centers
CA State Library of Information
The Center for Special Education Finance (CSEF) was established in October 1992 to address fiscal policy questions related to the delivery and support of special education services throughout the United States. CSEF will conduct the first comprehensive, nationally representative study of special education spending to be undertaken in more than a decade.
Learning & Disabilities Association for CA
California Dept. of Special Education
Regional Center Consumer Rights Complaint Procedures
Hearing Orders & Decisions Database (Look up your district and see the decisions made):
Special Education Hearing Office
Office of Administrative Hearings
Regional Center Database of Hearings
Autism Parent Support Sites by State
|
US |
||
|
CA |
||
|
CA |
||
|
CA |
||
|
CA |
||
|
FL |
||
|
FL |
||
|
IN |
||
|
KY |
||
|
NY |
||
| NY | ||
|
NY |
||
|
NJ |
||
|
NJ |
||
|
IL |
||
|
OR |
||
|
PA |
||
|
TX |
||
|
UT |
||
|
VA |
||
|
WI |
||
|
WI |
International
OOPS Wrong Planet!, Canada
Autism resource site, UK - England
Autism Parent Support Site – General
Conference & Parent training site
CSA Autism Research – Autism Links
Families for Early Autism Treatment (FEAT)
Interd. Council on Dev & Learning Disorders
Mothers from hell – all disabilities
The Miller Method (educational resources for ASD)
Autism-Unravelled is a great resource
Families for Early Treatment of Autism
Assoc for Science and Treatment In Autism
Family, Friendly Fun w/ Special Needs
National Alliance for Autism Research
Diagnosing Autism – The Criteria
First Signs – developmental milestones
Good site for typical child development
Diagnostic & Assessment Instruments for ASD
Therapies
- ABA
- Lovaas (Founder of ABA for autism)
- ABA
- ABA Overview
- Association for Behavior Analysis International
- Journal of ABA
- Autism & ABA Resources - Childhood Learning Center
- Autism ABA therapies resources & funding
- Jericho School
- Dr. McGreevy
- Christine Burka
- Beh. Analysis Certification Board
- Cambridge MA Behavioral Program
- Kathyandcalvin.com
- Behavior-analysis.org - Florida
- Autism Spectrum Consultants - Southern California
- Dr. Carbone
- ABAconnections.com - Therapist job postings and other hints
- autismprograms.com - Southern California ABA provider
- Handy Worksheets for ABA programs
- Interventionsunlimited.com - Another ABA Providers site
- Floortime
- Stanleygreenspan.com
- Icdl.com - Floortime conference notes
- David. G. Nelson - Atlanta, Georgia
- Other Intervention Therapies
- Picture Exchange Communication System (PECS)
- Augmentative Communication Devices
- DynaVox - Alternative communication device manufacturer
- Prentke Romich Company - Augmentative Communication Devices
- Abledata - Assistive Technology & Special Ed Ideas
- Occupational Therapy
- Sensory Integration
- Visual Processing
- Auditory Processing & AIT
- NCAPD - Auditory Processing Disorders
- Boys Town National Research Hospital - Boys Town / Hearing & Visual issues
- Earobics – auditory training @ home
- Music Therapy Article
- Sound Listening Corp. - Tomatis Training
- Auditory Integration Training Services
- The Davis Center
- Georgiana Institute AIT
- IMPACT - Deaf & Hard of Hearing Children site
- Central Auditory Processing Disorder
- Scientific Learning - Fast Forward Info & Pre-FF programs
- Socialization & Playskills Therapies
- Autism Social Videos
- Melinda Smith - Teaching social & Play skills
- Center for Social Thinking - Teaching Social & Emotions
- Social Skils Providers
- Puppets used for teaching social skills
- Hyperbaric Oxygen Therapy
- HBOT Online
- HBOTreatment.com - Specifically for kids with CP
- Hippotherapy (Horse back riding)
- Ride On Therapeutic Horsemanship - Based in Chatsworth, CA
- NARHA - North American Riding Assoc.
- Neurofeedback
- Technology Solutions for the Disabled
ADD & ADHD
CHADD - Adults & Children w/ ADD & ADHD
Teaching the ADHD Child- Special ADD & ADHD Site
Asperger's Syndrome
OASIS – Online Aspergers Assistance
Tourettes Syndrome
Clothes & Shoes
One Step Ahead - Custom clothes
In Your Pocket - Weighted vests
Velasoft - Vest used for Scuba –also can be used for ASD Kids
Quiet Quilt - Weighted quilts
Misc Treatments
Draw & Color with Uncle Fred - Step by Step site on learning to draw
Doctors & Medical Information
ACAM - American College for Advancement in Medicine
Natural Solutions - Alternative Medicine Site
Medigenesis- Dr. Sidney Baker
Hardy Healthcare Associates- Dr. Paul Hardy
Dr. Mary Megson - Must read for Vit A therapies
Autism Network Resources for Physicians- Autism Research for Doctors
Autism Research Unit, UK - Sunderland Protocol (Dr. Shattock’s)
Dr. Amy Holmes - Focus on Mercury
Neuro Immune Dysfunction Syndromes- Dr. Michael Goldberg - CA
Vaccine Injured Children - Autism Autoimmunity Site
Dr. Woody McGinnis - Nutitional Perspectives on Behavioral Child
The Gray Center – Founder of Social Stories
Dr. Doris Rapp - author of Is This Your Child?
Landau-Kleffner Syndrome-variant
Amen Clinic (Brain scans & testing)
Safe & Effective Homeopathy for ASD Children
Developmental Disablilities Resources for Healthcare Providers
Surgical Anesthesia and Autism - great information from ARI
Parasites
Dr. Clarks Therapy for Parasite Treatment
Cranial Sacral Therapy
Enzyme / Digestive Intervention
Repligen - Secretin manufacturer
Klaire Labratories - Digestive Enzyme manufacturer
Houston Enzymes - Digestive Enzyme manufacturer
Enzymedica (click on Questions)
Speech Issues
Apraxia Kids - A great resource for speech issues
Pyramid Products - PECS Picture Exchange Communication System
Kaufman's Children Center for Speech
The Prompt Institute- Language Development
Super Duper Publications - Supplies for speech and language development
Lingui Systems- Another resource for speech & supplies
Scientific Learning - Fast ForWord for Language Processing issues
University Listings for programs in Speech and Language Pathology
California Speech & Language Association
American Speech & Language Association
Dimensions Therapy Center - Speech resource
Speaking of Speech! - Speech resource
The Hanen Centre - More Than Words –Hanen Program
Early Learning Site - Early learning /speech focus software site
Kids Wings - Special speech songs & resource site
Hyperlexia
American Hyperlexia Association
Hyperlexia and Language Disorders
Dyslexia
Davis Dyslexia Association International
Vitamin Supplements for Autism
Nutition Now - Rhino Supplements & other ideas
Millenium Nutitionals - DAN PLEX Supps
World Health MallCarn-Aware - L-Carnosine, Zinc Product
Culturelle - Probiotic
Omega Nutrition - Omega 3 Fatty Acid provider
Labs for Medical Testing
Hemex Labs – Chronic fatigue & coagulation
Body Balance - Hair test for Metals
List of Compounding Pharmacists
Laboratoire Philippe Auguste - Porphyrins test
Dietary Information
The GFCF Diet - Great resource- Gluten Free/ Casein Free Diets
Autism Network for Dietary Intervention - Karyn Seroussi & Lisa Lewis
Low-Oxalate Diet (LOD) - Susan Owens
Why the GFCF Diet? - Lisa Lewis’ original web site
List of Food Manufactures and their 800 #s
Paleodiet - grain, bean, dairy, potato, sugar free
Dr.Cade, University of Florida Dietary Research
Site for Avoiding Corn - Site for AVOIDING CORN
DariFree - Milk alternative –made with potatoes
Yeast Connection Information - Dr. Crook
Allergy Connection - Super site on allergies
Living Without - Dietary page
The No Milk Page – dairy intolerant web site
Ojibwa Tea of Life- Organic Tea used by Karyn Seroussi
Twin Valey Mills - Sells Sorghum Flour (A gluten free alternative)
The Chef's Thesaurus- Great site for switching ingredients in recipes
Biologic Classification of Fods: Plant Kingdom - Food Families
What do I Feed My Child? - Rotation Diet Information
Clan Thompson - Gluten Free Drug Database
University of Maryland School of Medicine - Celiac Disease Resource site
Online GFCF Food Companies
Celtic sea salt, oils, grains & other cool stuff
Whole Foods Market's Special Diets Index
Lenny Larry specializes in COOKIES
School District & IDEA Law
Association of Universities Center on Disabilities
Special Education Sample Letters
FAPE - Family & Advocates Partnership for Education
Protection & Advocacy for California
Mayers Law Special Education - Mayers Law Special Ed
The Council of Parents, Attorneys & Advocates
Great Schools - Parents Guide to K-12 Success
Technical Assistance Alliance for Parent Centers
Abledata- Assistive Technology & Special Ed Ideas
Council for Exceptional Children
National Center to Improve Special Education
From Emotions to Advocacy - Special Education Survival Guide
TASH - International Association of People With Disabilities
Special Ed News - Special Education news site for Parents
Advocacy
Listing of Protection & Advocacy agencies by state
Home Schooling
Polyxo.com - Teaching Children with Autism
Homeschooling Children with Special Needs
HSLDA - Advocates for Homeschooling
Sites on Inclusion in Typical Education Environments
Polyxo.com- Teaching Children with Autism
Parent Tips & Ideas From The Ideal Lives Project
Health Insurance Reports
Report Cards on California Healthcare Insurance Plans
Sample Letters
Government
Congressional Committee on Oversight & Government Reform
Find you Congressional Representative
American Academy of Pediatrics
CDC - Centers for Disease Control
Americans with Disabilities Act
Education & Therapy Supplies
Do 2 Learn - ABA & Toys for Children with autism
Mayer-Johnson - Products for Special Ed
Itellitools - Products for Special Ed
Super Duper Inc. - Great supply web site
Therapro - Therapy products
Stages Learning Materials - Therapy products
Unschooling.com - Home schooling resource
American Hyprelexia Association
Sammon Preston Therapy Supplies
Math U See - Visual math training program
Social Skill Builder - Social Skills Computer Training program
Early Learning Site - Learning /speech focus software site
Lekotek - Toys & Therapy supplies for Special needs children
Closing the Gap - Software and tools for educating special needs children
Vaccines, Mercury and Metal Toxicity
Environmental Protection Agency
Vaccine Injury Alliance - Lawsuit attorney for vaccines
National Vaccine Information Center
National Vaccine Injury Compensation Information
Parents Requesting Open Vaccine Education
Austrailian Vaccination Network
Vaccine Exemption Forms - by state
Book & Video Resources
Funding Options
Sallie Mae - This web site provides funding / financing for therapy, therapy supplies, intervention and other items without collateral at prime rate plus 1%.
